Atlanta, GA -- (SBWIRE) -- 07/10/2015 -- Nataline Mary Sarkisyan (Armenian: July 10, 1990 – December 20, 2007) was an American teenager with recurrent leukemia. Her case became part of the health care reform debate in the United States in 2007 when Cigna HealthCare denied coverage for a liver transplant operation. The company later reversed its decision after a great deal of media attention to her story, but Sarkisyan died hours later.
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Nataline Sarkisyan's Fashion Legacy 7 #NFL7
Years later, the Sarkisyan family continues to cherish Nataline's big dream of becoming a fashion-designer by holding an annual Fashion Show called: "Nataline's Fashion Legacy." It is help every July to celebrate her birthday. "I will continue my daughter's legacy; I will continue my fight to save innocent lives, and to make changes to our healthcare system. My mission is to replace the "Erisa Law" to "Nataline's Law" for NO more denial. My message to all the parents out there: Love and enjoy your children and tell them how much you love them every day." (Health Advocate, Hilda Sarkisyan)
The chief of the Baylor Regional Transplant Institute in Dallas, Dr. Goran Klintmalm, said this particular operation was a "very high-risk transplant." Dr. Klintmalm did state that he would consider the same operation on a similar patient. On December 11, 2007, Cigna rejected the request for coverage for the liver transplant. Sarkisyan's doctors at the UCLA Medical Center, including the head of its transplant unit, wrote a letter to protest that the treatment proposed was neither experimental nor unproven and called on Cigna to urgently review its decision. Please DONATE TODAY to help Nataline Sarkisyan's legacy!
Cigna HealthCare refused to pay for treatment by citing policy-provisions which do not cover services considered experimental, investigational and/or unproven to be safe and/or effective for the patient. Cigna noted that it had no financial-stake in the decision because it only administered the insurance-plan and would not bear the cost of any operation. The cost of a liver transplant, and one year of follow-up care, was $450,000 in 2005. UCLA declined two livers while waiting for insurance-approval from Cigna. Ms. Sarkisyan's family was informed that they could proceed with the transplant if they could make a down-payment of $75,000.
Nataline's dreams will, in turn, help one of her peers live their dream. The Fashion-Legacy was created to honor Nataline Sarkisyan and the aspirations she had. Despite being diagnosed with leukemia, there were some things which leukemia just could not take from Nataline. Her teenage dreams and hopes of organizing and holding a fashion show. Nataline lost her courageous battle on December 20, 2007, but her big dream will be fulfilled and her loving, generous spirit will live on forever. Every July, in homage to Nataline's birthday, the Fashion-Legacy will be held. Help Make Nataline's Sarkisyan Dream Come True!
About The Foundation
Nataline's family set up the Nataline Sarkisyan Foundation, which helps students who share Nataline's dreams of pursuing fashion design, culinary art and those who want to pursue careers in helping the ill. The Idea for the foundation started with a sketchbook. A sketchbook filled with one young girl's aspirations to become a fashion designer. From this sketchbook came the inspiration to hold an annual fashion show honoring its owner, Nataline Sarkisyan. After seventeen-year-old Nataline tragically lost her life to leukemia in December of 2007, her family sought refuge in the dreams she had left behind. Upon discovering Nataline's sketchbook and studying the pages of clothing she had designed, her family knew exactly how to celebrate their beloved daughter's memory.