New York, NY -- (SBWIRE) -- 06/22/2015 -- Diagnosed with leukemia at age 14, Nataline Sarkisyan had health insurance coverage under the employer coverage of her parents. Physicians informed the family and insurance company, Cigna HealthCare, that patients in similar circumstances have a six-month survival rate of 65% after a liver transplant. The likelihood of success of the recommended procedure was questioned. Dr. John Roberts, chief of the transplant service at UC San Francisco (not the transplant center treating Sarkisyan), stated that his center generally does not accept a patient without a 50% or greater five year survival rate. Please DONATE TODAY to help children with cancer!
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Cigna HealthCare refused to pay for treatment by citing policy-provisions which do not cover services considered experimental, investigational and/or unproven to be safe and/or effective for the patient. Cigna noted that it had no financial-stake in the decision because it only administered the insurance-plan and would not bear the cost of any operation. The cost of a liver transplant, and one year of follow-up care, was $450,000 in 2005. UCLA declined two livers while waiting for insurance-approval from Cigna. Ms. Sarkisyan's family was informed that they could proceed with the transplant if they could make a down-payment of $75,000.
Nataline Mary Sarkisyan (Armenian: July 10, 1990 – December 20, 2007) was an American teenager with recurrent leukemia. Her case became part of the health care reform debate in the United States in 2007 when Cigna HealthCare denied coverage for a liver transplant operation. The company later reversed its decision after a great deal of media attention to her story, but Sarkisyan died hours later.
Years later, the Sarkisyan family continues to cherish Nataline's big dream of becoming a fashion-designer by holding an annual Fashion Show called: "Nataline's Fashion Legacy." It is help every July to celebrate her birthday. "I will continue my daughter's legacy; I will continue my fight to save innocent lives, and to make changes to our healthcare system. My mission is to replace the "Erisa Law" to "Nataline's Law" for NO more denial. My message to all the parents out there: Love and enjoy your children and tell them how much you love them every day." (Health Advocate, Hilda Sarkisyan)
About The Foundation
Nataline's family set up the Nataline Sarkisyan Foundation, which helps students who share Nataline's dreams of pursuing fashion design, culinary art and those who want to pursue careers in helping the ill. The Idea for the foundation started with a sketchbook. A sketchbook filled with one young girl's aspirations to become a fashion designer. From this sketchbook came the inspiration to hold an annual fashion show honoring its owner, Nataline Sarkisyan. After seventeen-year-old Nataline tragically lost her life to leukemia in December of 2007, her family sought refuge in the dreams she had left behind. Upon discovering Nataline's sketchbook and studying the pages of clothing she had designed, her family knew exactly how to celebrate their beloved daughter's memory.